I think what non-spoonies tend to forget is that chronically ill people do not just get ill more often than other people, but are ill all the time. When we miss school or cancel appointments, it is not because we ‘felt a bit peaky again’ and decided to not go – we feel bad most of the time, but still do things anyway. A lot of us feel ill, in pain etc. all the time, and we cancel plans/take time off when we physically or emotionally cannot cope with the day or the things required of us. Our ‘good’ or ‘okay’ is a healthy person’s ‘awful’. We are consistently making more effort than ‘normal people’ in order to live and make a living, and we often make that effort at the expense of our health. And it is so hurtful and offensive when people we know/ friends/ family/ teachers etc. get frustrated and annoyed because they think we are not trying hard enough. We are always trying. We are always fighting. Sometimes it’s too much.
I want to reblog this a million times.